4/30/12

Snuck up on me again

Monday is here again, how does time fly while your having fun but crawl when your not. I miss Noel all week long while she is gone at school ; she's my baby girl and only 4 years old but yet I have to make a choice I will have to live with -the choice to send her to a school two hours away so that she doesn't have to ride in a vehicle 4 hours a day plus school for 8 hours....Whewwwww that's a lot on a baby that's a lot on a parent. I get her back on the weekends and they fly by so fast , I'm so happy school is almost out and she will be home all summer long.

Just missing my baby girl, I still have my other girls at home but its no comparison to having all of my girls home with me at once. Kendall and Giuliana miss Noel when she is not home too, they ask when sissy is coming home our house is not a home when we are all not there to share it together.

Ive been asked about my Wish List ( Donate ) Button up to the right of my blog - this button was put here a while ago. If you have been with me since the start of this blog- It was my very intention to take Noel to China to get stem cells to help her eyes Ive since realized people that don't know or haven't experienced what life is like and the challenges we face day to day don't actually know or don't believe in the therapy or are hesitant to help. I've put this button there to help with any of the trips, therapies, special needs toys , equipment etc that Noel may need. This account is strictly for Noel and the things she may need- what makes a company charge outrageous amounts for a child that needs things different.

4/28/12

What to do ?

I'm so torn on what to do, not so much torn but I feel helpless in the situation that I'm in. Noel has her feeding clinic scheduled for May 30- June 22 she desperately needs this clinic, just the two things they told me to do at home with her on our initial visit she has been doing slowly and I know with more intensive treatment she will overcome this feeding issue. 


How do people make it with no savings, one income and no family support? I never expected the challenges I face but I always embrace them and do what I have to do and think that somehow God will see us through it and he has for sure. If it wasn't for donations when the girls were born, we would have never been able to go run back and forth the 2 hours away that they were to see them. We wouldn't of been able to pay for a place to stay and co-pays etc while I was out of work. I just don't understand how people do it, we have no family support, no savings and one income I'm praying that this situation will work out for us. I don't want to be a failure to my child. I feel so angry with the insurance company for not providing the things that we can use at home to help her we have great insurance through my job and she still gets nothing. Special needs toys - why are they so expensive life definitely  works against you but I try so hard to stay positive. Letting my daughter stay at the dorm at her school I know they love her to death but she is 4 years old, what do I do I can't provide everything she needs to blossom and grow into an independent young lady, makes me as a mom sometimes feel like a failure. Either way she is my daughter I love her and will do what I need to do for her and the rest of my family if we eat double cheeseburgers every day for a month. 



4/12/12

How do you do it ?

This is a question that bothers me. How do you do it? I have three children and I work full-time and I am the sole breakmaker in my home. I drive my daughter to school everyday, pick her up from a friend that helps me with her, home to fix dinner, baths, bed and do it all over again. How do I do it ? I just do it.

When given the opportunity you either excel or fail. I want my children to go after and do anything they want. Nothing should hold them back, not vision , not autism , not chronic lung disease NOTHING. You can succeed at anything you set your sights on or you can fail miserably. I choose to set an example for my children.

Don't let the opinions of the average man sway you. Dream, and he thinks you're crazy. Succeed, and he thinks you're lucky. Acquire wealth, and he thinks you're greedy. Pay no attention. He simply doesn't understand.
Author " Robert G Allen "