What to do ?

I'm so torn on what to do, not so much torn but I feel helpless in the situation that I'm in. Noel has her feeding clinic scheduled for May 30- June 22 she desperately needs this clinic, just the two things they told me to do at home with her on our initial visit she has been doing slowly and I know with more intensive treatment she will overcome this feeding issue. 


How do people make it with no savings, one income and no family support? I never expected the challenges I face but I always embrace them and do what I have to do and think that somehow God will see us through it and he has for sure. If it wasn't for donations when the girls were born, we would have never been able to go run back and forth the 2 hours away that they were to see them. We wouldn't of been able to pay for a place to stay and co-pays etc while I was out of work. I just don't understand how people do it, we have no family support, no savings and one income I'm praying that this situation will work out for us. I don't want to be a failure to my child. I feel so angry with the insurance company for not providing the things that we can use at home to help her we have great insurance through my job and she still gets nothing. Special needs toys - why are they so expensive life definitely  works against you but I try so hard to stay positive. Letting my daughter stay at the dorm at her school I know they love her to death but she is 4 years old, what do I do I can't provide everything she needs to blossom and grow into an independent young lady, makes me as a mom sometimes feel like a failure. Either way she is my daughter I love her and will do what I need to do for her and the rest of my family if we eat double cheeseburgers every day for a month. 

How do you do it ?

This is a question that bothers me. How do you do it? I have three children and I work full-time and I am the sole breakmaker in my home. I drive my daughter to school everyday, pick her up from a friend that helps me with her, home to fix dinner, baths, bed and do it all over again. How do I do it ? I just do it.

When given the opportunity you either excel or fail. I want my children to go after and do anything they want. Nothing should hold them back, not vision , not autism , not chronic lung disease NOTHING. You can succeed at anything you set your sights on or you can fail miserably. I choose to set an example for my children.

Don't let the opinions of the average man sway you. Dream, and he thinks you're crazy. Succeed, and he thinks you're lucky. Acquire wealth, and he thinks you're greedy. Pay no attention. He simply doesn't understand.

Author " Robert G Allen "

My how time flys

Time does fly when your having fun so they say. Ive been super busy with working and driving Noel to and from school and her two sisters. Its definitely a different journey but I do love it and wouldn't trade it for anything. The West Virginia School for the Deaf and Blind has done so much for Noel she is progressing more then I thought she would have by this time and she will still have another year of preschool next year and Id like to think by then she may be caught up enough with her peers, i definitely believe it could happen I didn't think she would be walking already without the assistance of her AFO's / DAFO's by the way she hates. 


I just got finished packing a bag for Noel for the whole week, its getting to be winter here and we have had snow once or twice I drove the mountains two weeks ago when the school didn't close and thought - what am i doing these roads were not plowed , icy and I just took it slow I was scared to death especially because I had her in the car would have been one thing if she wasn't but then again I wouldn't have been going that way if she wasn't. So the bag is packed just as an emergency bag so in case she needs to stay which is a great option if she needs to do she can and has the things she needs, its a dangerous drive without snow and ice add that its treacherous. 


Well back to school tomorrow a new week begins every week I get so excited to see what she will learn next.

Noel at her Christmas Play 12/16/2011 standing all by herself