5/2/12

And they say .....

What doesn't kill you makes you stronger right ? Sometimes I wish it would just kill me. If this was so.. I should be the strongest person on the planet. I should be so trim and fit and no feelings whatsoever, but I do. By all means my life is not the worst my children are healthy they have there issues and this is sorta hard because I have made it that way at times by my own decisions, other things are not my fault they just seem to keep flying at me like I'm in a batting cage trying to dodge balls, but I keep getting smacked one after another to the point I don't know If i can keep getting up. 


So where did that saying come from anyways? Some person who has it all ?





Would money make my life easier - maybe a little would it make all my problems go away absolutely not. 


Would having the perfect mate make my life easier - maybe it would make my stress level a little bit more manageable if I felt like someone was there to back me up and catch me when I fall but not everyone is perfect. 


Would having a huge family that understands whats going on in my life and that didn't seemed so consumed with their own lives help. I think so..... I feel all alone and I feel like I'm failing my daughter once again and that my family is failing me.


Thank you Insurance company for denying my daughter a feeding chair..


Thank you Secondary insurance for denying my daughter a feeding chair. 


Thanks to a program I applied to for kids with autism and special needs for denying my daughter an iPad when she clearly had enough votes but it went to a FRIEND of the owners site. * But thank you for giving away iPad  to kids that need them * 


Thank you State of WV and SSI for telling me I make too much money - anything over working at McDonald's is too much. 


Sometimes you just get tired of asking and seeking for help, people have abused the system so much that when a real child, adult or elderly person really need it. THEY DON"T GET IT. 


My plea - if anyone knows of any resources please point me in the right direction. I think I have tried all avenues but you never know. There isn't anything I won't do to give my daughter EVERYTHING. 


I have heard of grants to get sensory toys or a sensory playground or room , technology equipment etc.

You can email me directly here  Jessica Marinaccio

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2 comments:

  1. FayeMay 3, 2012 at 8:05 AM

    Jessica, have you contacted the DDD? Here's the link: http://www.wvdhhr.org/bhhf/mrdd.asp

    We're in the same boat with JP. We make too much money for SSI or Medicaid, but our insurance denies things. WE had to purchase a white cane for JP... his O&M didn't provide one. His iPad came out of pocket as well... His IEP team thinks PECS are better than iPad (oh, and they don't support Apple products... what???)

    Depending on what you need, you could contact your local chapter of the NFB. They may be able to help.

    Hang in there. You know your babies need you!

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  2. quadmomJune 30, 2012 at 5:24 PM

    I am not sure if this is useful, but I found this list of possible grants online:

    http://www.autism-pdd.net/testdump/test21489.htm

    You are in my prayers. I can't imagine doing what you're doing without a strong support system. We have quadruplets, but our family has been a major source of help. I really think you're amazing.

    ReplyDelete

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