1/22/12

My how time flys

Time does fly when your having fun so they say. Ive been super busy with working and driving Noel to and from school and her two sisters. Its definitely a different journey but I do love it and wouldn't trade it for anything. The West Virginia School for the Deaf and Blind has done so much for Noel she is progressing more then I thought she would have by this time and she will still have another year of preschool next year and Id like to think by then she may be caught up enough with her peers, i definitely believe it could happen I didn't think she would be walking already without the assistance of her AFO's / DAFO's by the way she hates. 


I just got finished packing a bag for Noel for the whole week, its getting to be winter here and we have had snow once or twice I drove the mountains two weeks ago when the school didn't close and thought - what am i doing these roads were not plowed , icy and I just took it slow I was scared to death especially because I had her in the car would have been one thing if she wasn't but then again I wouldn't have been going that way if she wasn't. So the bag is packed just as an emergency bag so in case she needs to stay which is a great option if she needs to do she can and has the things she needs, its a dangerous drive without snow and ice add that its treacherous. 


Well back to school tomorrow a new week begins every week I get so excited to see what she will learn next.





Noel at her Christmas Play 12/16/2011 standing all by herself 

12/2/11

School Pictures

 So here is Ms. Bonnie, Noel loves to talk about Ms. Bonnie and as you can see from the pictures she is so happy with her. I think Ms. Bonnie likes Noel just as much as Noel likes her : )

Noel has been practicing walking with a walker, I hear she has been doing quite well, we went to Kennedy Krieger in Baltimore, MD and she is getting AFO's for her legs because Noel tends to walk on her toes and is not steady. We go to get casts put on her legs next week and  hope that these new molds will help in getting Noel up and mobile on her own.
 My little indian princess all dressed up for Thanksgiving at school, she is sitting in her feeding chair/ wheelchair. Noel still has quite an issue with eating so she has to be restrained to eat, we are hoping to get something similar to this very soon as well it would be such a huge help to have this at home.


Noel's 2011- 2012 School Pics



Little Red Riding Hood

11/15/11

School so far

Noel has been in school since the end of August, doing an awesome job. It was tough leaving her in the dorm for a few days here and there but I think she probably enjoyed not riding in the car/ bus all day. All the teachers and aides at her school just love her to pieces, I feel so comfortable at her school I dont want to leave I could just sit with her all day and watch her learn and grow.

Noel has more of a vocabulary now and it amazes me everyday. She is not crawling as much she walks along the furniture and even takes a step or two.

Just met with the medical equipment company yesterday to get Noel a stander and a feeder chair for the home so we can work on these things at home as well, feeding is such a complex issue with Noel that we need all the help we can get.